Here I go…again!

Again? When will it stop!

I can’t believe it!  I STILL have to practice my speech….1 time a day…for two weeks….before I can deliver it.  And this isn’t Putting Failure In Its Place.  No, this is My Brain Has A Hole In It!

But wait….there is more.  I didn’t make any changes in the speech and I still have to practice!

Is there something wrong with me? Do I just not get it?

This is the first week of reading the speech;  I have had to focus on what I was trying to say in the speech; the words just ran together.  I know that isn’t normal; I just have to get use to it. I delivered this speech about 500 times now…and I still have to read it.

Frustrating. On the flip side: my telling the story won’t get old…because for me, it is like the first time delivering the speech.


The Stroke Risk Factors All Women Should Know

Strokes aren’t just an old-person problem—and not recognizing seemingly-innocent symptoms (such as neck pain) may put you in danger!

It was 4 a.m. on morning in November 2014, and Merideth Gilmor, a publicist who represents athletes like Maria Sharapova, was looking forward to finally going to sleep. The day had started early, with her usual eight-mile run. Then she and her husband had gone to her best friend’s wedding, where they spent the night “partying like rock stars,” she says. By the time she got back to her hotel room, she was more than ready to fall into bed and conk out. But as she did just that, she felt something weird. “I’ll never forget it; it felt just like I’d snorted a huge dandelion up my nose. Then my vision went black,” she remembers. “I could hear, but I couldn’t communicate and I couldn’t move.”

Gilmor, then only 38 years old, had just had a massive stroke.

A Growing Problem
Gilmor’s far from alone. “Stroke prevalence in younger women has been on the rise,” says Philip B. Gorelick, M.D., the medical director at the Mercy Health Hauenstein Neuroscience Center in Grand Rapids, MI. Between 1988 to 1994 and 1999 to 2004, stroke prevalence in women aged 35 to 54 tripled; men experienced virtually no change, says Gorelick. While it’s one of the top five medical diagnoses young women don’t expect, overall, about 10 percent of strokes occur in people younger than 50. (Another shocking stat: Stroke kills two times as many women as breast cancer each year.)

“It’s hard to know if the prevalence is increasing, or if we’re just becoming better at recognizing strokes in younger adults,” says Caitlin Loomis, M.D., an assistant professor of neurology at the Yale School of Medicine, and a neurologist at Yale-New Haven Hospital. But Gorelick theorizes that strokes are becoming more common, in part because high blood pressure and high cholesterol levels, two risk factors for stroke, are affecting more women at younger ages. (Did you know there’s a link between insomnia and high blood pressure?)

While awareness of the problem is certainly growing, because strokes are so much more common in older adults, many people—doctors included—fail to recognize symptoms when they occur in younger women. About 13 percent of stroke sufferers are misdiagnosed, according to a recent study in the journal Diagnosis. But the researchers found that women are 33 percent more likely to be misdiagnosed, and people under age 45 are seven times more likely to be given a wrong diagnosis.

And that can be devastating: Every 15 minutes a stroke sufferer goes without getting treatment adds another month of disability to their recovery time, according to research in Stroke.

Luckily, Gilmor’s husband recognized her symptoms—partial paralysis in her face, confusion, slurred speech—as a stroke. “I heard him call 911, and I thought, I should get dressed. But I couldn’t move my limbs,” she says. At the hospital, the doctor’s confirmed what her husband feared: She’d had an ischemic stroke, which account for about 90 percent of all strokes and occur when something, usually a clot, obstructs a vessel supplying blood to the brain. (Hemorrhagic strokes, on the other hand, occur when a blood vessel tears or ruptures.)

Carolyn Roth wasn’t quite so fortunate. In 2010, she was just 28 when she developed her first warning sign: serious pain in her neck after a trip to the gym. She wrote it off as a pulled muscle. She also managed to explain away the diamond-like spots that clouded her vision as she drove home that night and the neck pain that kept her popping Tylenol the entire next day.

Finally, the next morning she was concerned enough to call her father, who took her to the hospital. She went in around 8 a.m., and a few hours later a doctor told her she’d had a stroke. “They knew right away, because my eyes weren’t responding to light,” she says. But she was floored. While she’d felt pain, nausea, confusion, and vision impairment, she hadn’t experienced some of the more “typical” symptoms, such as left-side paralysis. That may be because her stroke was caused by a dissection, or a tear in an artery, usually the result of some sort of trauma like a car accident or violent coughing fit. (Certain symptoms—like these top warning signs—you should never ignore.)

“When it comes to stroke recovery, time is of the essence,” says Loomis. “Certain medications are only useful when delivered within a three to 4.5-hour window, so it’s essential that stroke victims are brought to a hospital as soon as possible and evaluated quickly.”

The Aftermath
Stroke recovery looks different for every patient. “A lot depends on the size of the stroke and the location in the brain,” notes Loomis. And while it’s true that recovery can be a long, slow road, contrary to what many people believe, a stroke isn’t necessarily a sentence for a lifelong disability. That’s especially true for younger patients, who Loomis says tend to do better than older patients when it comes to physical therapy and rehab. (Some health issues also affect men and women differently.)

Both Gilmor and Roth say they were lucky to have flexible jobs that allowed them to get plenty of rest. “Sleep is so important in the beginning, since your brain is trying to fix itself. It takes a long time,” says Roth. After taking a few months off from the gym to recover, she slowly began exercising again. “I’ll do any exercise now—I even ran the New York City marathon in 2013!” she says. (Thining of running? Check out 17 Things to Expect When Running Your First Marathon.)

Gilmor also credits her support system—her doctors, who she calls her “Stroke Squad” (Loomis was one of them), family, clients, coworkers, and friends—with her recovery. “I tried to see humor in everything, which I think helped,” she says. In addition to physical therapy, Gilmor, who still experiences weakness in her left side, slowly started rock climbing with her son as a way to rebuild her strength.

But running was her real end goal. “My son said to me, ‘Mom, I think you’ll be better when you can run again.’ Of course that made me be like, ‘Okay—I gotta run!’” says Gilmor. She’s currently training for the 2015 New York City Marathon, and, in fact, just finished a 14-mile long run.

“It’s not easy, trying to run a marathon,” says Gilmor. “But you just take baby steps. My whole outlook now is this: You’ve got to get past your excuses. You might be scared, but you’ve got to be bigger than the fear.”

What You Can Do Now
There’s nothing you can do to guarantee that you’ll never have a stroke. But these seven strategies can help minimize your risk—and support present-day survivors.

1. Know all the signs: The acronym FAST is a good place to start. It stands for Face drooping, Arm weakness, Speech difficulty, and Time to call 911—which covers the main symptoms of most strokes. “But I would say the more important thing to remember is that if anyone changes suddenly in front of your eyes, get help,” says Dr. Loomis. In addition to FAST symptoms, suddenly developing vision problems, being unable to talk or stand upright, slurred speech, or otherwise just not seeming like one’s normal self can all be signs of a stroke.

2. Be wary of certain meds: Gilmor’s doctors believe her risk for having a stroke was elevated due to the type of birth control she took. “Any hormonal contraception that contains estrogen, including many birth control pills, patches, and vaginal rings, do increase your risk for forming a clot,” says Loomis. Usually, those clots wind up in a vein, not an artery. But if you have other risk factors, like high blood pressure, you may want to talk to your ob-gyn about switching birth control. (One writer shares why she’ll never take the Pill again.)

3. Never ignore neck pain: About 20 percent of ischemic strokes in adults under age 45—including Roth’s—are caused by cervical artery dissection, or a tear in the blood vessels leading to the brain, research in The Open Neurology Journal shows. Car crashes, coughing or vomiting fits, and sudden twisting or jerking motions can all cause these tears. Loomis says that doesn’t mean you should avoid yoga (after all, millions of people twist and jerk their heads around every day and nothing happens), but you should pay close attention to how you feel after doing anything that causes abrupt movements to the neck. If you feel extreme pain or nausea, or notice any vision problems after, get to a doctor stat.

4. Stretch it out: You’ve heard the warnings about making sure to stand up and stretch when you’re flying. Chances are, you’ve also ignored them—especially if you’ve been in a window seat. But flying can encourage blood to pool in your legs, increasing your risk of forming clots that could then move toward your brain, says Loomis. (Gilmor’s doctors think a recent plane ride, combined with her Pill use, is what triggered her stroke.) A good rule of thumb: Get up and stretch or walk the aisles at least once an hour.

5. Keep tabs on these numbers: Make sure to get your blood pressure and cholesterol taken regularly, and if the numbers start creeping up into the “higher than normal” zone, ask your doctor what you can do to get them back down, suggests Gorelick. High blood pressure damages blood vessels, and high cholesterol may increase your chances of developing a clot.

6. Stick to a heart-healthy diet: Loomis recommends the Mediterranean diet, which has been shown to reduce cardiovascular disease. “It’s high in fish, nuts, and vegetables, and low in red meats and fried things,” she says. Get started with these Mediterranean Diet recipes. Eating this kind of clean diet will also help you maintain a healthy weight, which Gorelick and Loomis agree is one of the easiest ways to reduce your risk of stroke.

7. Support survivors: If you haven’t personally been affected by stroke, you probably don’t have to look that far to find someone who has: Every 40 seconds, someone has one, and today there are 6.5 million stroke survivors living in the U.S. And as Loomis says, “A stroke is a life-changing event that can be hard to get through, physically, and emotionally. Having a network of support makes a huge difference.” To help support survivors, the National Stroke Association just launched their Come Back Strong movement. There are tons of ways to get involved: changing your profile picture to the Come Back Strong logo, donating money, or taking part in the Comeback Trail event on September 12—dedicate a local trail to a stroke survivor you know, and walk it in honor of his or her path to recovery on that day.

I received an email!

I received an email today from someone who heard me speak:

Hi Gordon,

I heard you speak at Intel last month and after hearing your story of recovery, I’m hoping that you might have some good advice to give my family.


My brother David had a stroke in February 2013 at the age of 45.  He’s recovered physically, but is still greatly affected by aphasia.  While he has all cognitive ability and grasp of most of his vocabulary, he simply cannot grasp sentence structure, verb tense, and the language usage skills that are needed to speak fluently and to write fluently.


He cannot find therapy programs to help with his specific need.  The existing programs seem to cater to older patients needing life skills training such as how to cook and iron without hurting themselves.  This frustrates him since he has no deficits in those areas.  He was driving a car and doing everything else independently within months of his stroke, but has really struggled to regain speech and writing skills.


Do you have any advice on where we can find therapy programs or professionals focused on regaining functional writing and speech skills?  Any advice would be greatly appreciated.

I recommended him to Bill Connors.  Bill specializes in Aphasia and he truly understands my predicament.  If anybody has Aphasia, Bill is the one to contact at or 724.494.2534. He is based in Pennsylvania and his practice over WebEx so it is very convenient.

How do we communicate?

It’s interesting.

The disruption in Gordon’s thinking and speaking is for me, the most mysterious.  How is it that one minute, he is speaking in (mostly) full sentences and the next, he is looking at me with his mouth open and no words are coming out?  If this were happening to me, I doubt I would risk speaking much at all.

Not Gordon.  Every day he goes into his office and tries to make phone calls–cold calls to total strangers no less!!  He has a script that helps him direct communication to email rather than the phone, which is good.  However, now and then he still hits a block in speaking on the phone.  This is when he calls me into his office, points to the phone, and expects me to somehow know who he is talking to and what he is trying to say.  He fully expects me to walk in and seamlessly pick up the conversation where he left off.

While I appreciate his faith in my abilities, not once has this experience been seamless in any way.  The awkward silence while I try to figure out what is going on is evident to the poor person on the other end of the line.  We fumble the next few moments but eventually get the conversation back on track.

Does this happen every day?  Nope.  In fact, it is happening less and less.

Is it frustrating?  Yup!

Does it stop Gordon from making phone calls every day?  Not a chance!

All parts of recovery are a team sport, even communicating.  I am so thankful to have a teammate who is willing to keep training.

Jill Viggiano

What does stroke recovery look like?

In 2008 when Gordon was lying in his hospital bed and I was beginning to understand the
severity of Gordon’s stroke, I asked everyone at Rehab what his recovery might look like.  I got no answers other than “Every stroke is different”  which basically means I got no answers.

It was so frustrating!  I desperately needed some frame of reference, some concept of a recovery path that I could learn from.  For this reason, I have kept a log of Gordon’s recovery so that when I meet someone in the beginning of their stroke journey, I can say “This is what happened to us.”

Recovery milestones are harder to come by as time goes on.  I was thrilled last week to mark a big milestone in Gordon’s recovery 6-1/2 years post-stroke!  Swinging BOTH arms while walking is a task we have worked on for years!!  It wasn’t that long ago when he couldn’t swing his right arm at all, even when he was standing still and focusing 100% on just swinging his arm.

In addition to the arm swinging excitement, Gordon was shaking hands with people at my speaking engagement yesterday, using his right hand–and no one noticed!!! The fact that no one noticed means it felt NORMAL.  Another huge step forward in recovery.  Big things are still happening.

Jill Viggiano

How Frustrating

shutterstock_116071201Did this ever happen to you?

I set up a meeting and put it on our calendars.  On my way to the meeting, Jill, my wife, always asks “what do want to accomplish in this meeting.”  I will always start…and attempt to finish.  Sometimes I do and sometimes I can’t get the words out.

It happened today on our way to the American Stroke Association. She saw me getting frustrated and she  asked in a different way.  The problem is…I still won’t be able to get the words out. I just sat there…in silence…trying…and trying…but not getting the words out.  I am SO happy I have her following me where ever I go.

I tell her all the time how proud I am to have her as my wife; she never lets me down. When I get quiet, she pitches in.  The problem is I don’t know when I will be silent.  This little bit of trivia keeps our marriage alive. I found the perfect wife!