I don’t believe it; should I have included a picture?

Wow…I don’t believe it.  I posted that Jill will be speaking on April 26, and EVERYONE that logged into my Blog to read more about it.  When I wrote my last post about me having reading challenges, hardly anyone logged on to read it!

I don’t understand it.  Sure, Jill was there to help me through my recovery.  She help me re-learn EVERYTHING, she walked with me, she cared for our two beautiful children, she took care of all the bills, she took care of the house, she shopped for the groceries, she took me out driving so she could re-acquaint me with Lake Oswego, she helped the children with their homework, she listened to our kids complain about me, she cooked delicious meals EVERY NIGHT, she said prayers EVERY night, etc.  But thats it.  I did everything else: I sat around having people wait on me.

Now I feel dumb; I guess she WAS fantastic!  OK, sure…come see Jill speak about HOW she handled this crises with grace, faith and with love.

Now, can I talk about me?  If you didn’t read my LAST post, please continue…

I still struggle. Let’s see if I can explain it.

I recently read the birthday cards I received. They were very funny to everyone in the room.  But when I read them out loud, I had to concentrate on every word.  Unfortunately, I didn’t know what I was reading, but people laughed.

If I read them out loud several times, I might get the humor but it would take work.  It is hard to explain the disorganization in my brain.  When I read, I see each word but I can’t connect them in any context.  They are just a bunch of individual words.

Even now, Jill is writing this for me because I can’t do it myself.  I tried to tell her what I wanted to write about but my explanation was all over the place.  She asked me questions and worked with me until she understood what I am trying to explain.  It is frustrating but luckily, we work well together and usually laugh as we talk things through.

Language and cognition are big hurdles.  It has been 9 years and I am still trying!

See…wasn’t that REALLY good stuff???

Do you believe me?  Check out the following:

I don’t believe it; should I have included a picture?

Wow…I don’t believe it.  I posted that Jill will be speaking on April 26, and EVERYONE that logged into my Blog to read more about it.  When I wrote my last post about me having reading challenges, hardly anyone logged on to read it!

I don’t understand it.  Sure, Jill was there to help me through my recovery.  She help me re-learn EVERYTHING, she walked with me, she cared for our two beautiful children, she took care of all the bills, she took care of the house, she shopped for the groceries, she took me out driving so she could re-acquaint me with Lake Oswego, she helped the children with their homework, she listened to our kids complain about me, she cooked delicious meals EVERY NIGHT, she said prayers EVERY night, etc.  But thats it.  I did everything else: I sat around having people wait on me.

Now I feel dumb; I guess she WAS fantastic!  OK, sure…come see Jill speak about HOW she handled this crises with grace, faith and with love.

Now, can I talk about me?  If you didn’t read my LAST post, please continue…

I still struggle. Let’s see if I can explain it.

I recently read the birthday cards I received. They were very funny to everyone in the room.  But when I read them out loud, I had to concentrate on every word.  Unfortunately, I didn’t know what I was reading, but people laughed.

If I read them out loud several times, I might get the humor but it would take work.  It is hard to explain the disorganization in my brain.  When I read, I see each word but I can’t connect them in any context.  They are just a bunch of individual words.

Even now, Jill is writing this for me because I can’t do it myself.  I tried to tell her what I wanted to write about but my explanation was all over the place.  She asked me questions and worked with me until she understood what I am trying to explain.  It is frustrating but luckily, we work well together and usually laugh as we talk things through.

Language and cognition are big hurdles.  It has been 9 years and I am still trying!

See…wasn’t that REALLY good stuff???

Do you believe me?  Check out the following:

Jill is just amazing! Come see her speak….

Jill Viggiano headshot

Business Men And Women of
PORTLAND BUSINESS LUNCHEON
Invite you to Downtown April 26 with

Jill Viggiano

 You are invited to join us for our Downtown PBL luncheon, on Wednesday, April 26th at the University Club in downtown Portland. Our guest speaker will be Jill Viggiano.
Jill Viggiano spent 19 years working in commercial real estate before retiring to become a full time mom. As an active volunteer, Jill couldn’t help but raise her hand and take on leadership roles in the community.
The opportunity to form and advance philanthropic organizations and their causes kept her engaged in both local and national efforts. Jill’s style is to create a team environment where cooperation and accomplishment happen while having fun.
When her husband survived a massive stroke in 2008, Jill focused her skills on his recovery. She now assists him in his day-to-day needs as well as in his speaking career.
Jill wrote Painful Blessing, a book about her spouse and caregiver experience shedding light on the real life impact of acquired brain injury, and providing hope and encouragement to those facing significant challenges.
Jill’s story will touch your soul and inspire you to press through any circumstance. The cost of lunch is $25.00. Register today and invite a friend.
LUNCHEON DETAILS
RSVP REQUIRED
UNIVERSITY CLUB
1225 SW 6th Ave. Portland, OR 97204
WEDNESDAY APRIL 26TH
11:45 AM- 1:15 P

 

Jill is just amazing! Come see her speak….

Jill Viggiano headshot

Business Men And Women of
PORTLAND BUSINESS LUNCHEON
Invite you to Downtown April 26 with

Jill Viggiano

 You are invited to join us for our Downtown PBL luncheon, on Wednesday, April 26th at the University Club in downtown Portland. Our guest speaker will be Jill Viggiano.
Jill Viggiano spent 19 years working in commercial real estate before retiring to become a full time mom. As an active volunteer, Jill couldn’t help but raise her hand and take on leadership roles in the community.
The opportunity to form and advance philanthropic organizations and their causes kept her engaged in both local and national efforts. Jill’s style is to create a team environment where cooperation and accomplishment happen while having fun.
When her husband survived a massive stroke in 2008, Jill focused her skills on his recovery. She now assists him in his day-to-day needs as well as in his speaking career.
Jill wrote Painful Blessing, a book about her spouse and caregiver experience shedding light on the real life impact of acquired brain injury, and providing hope and encouragement to those facing significant challenges.
Jill’s story will touch your soul and inspire you to press through any circumstance. The cost of lunch is $25.00. Register today and invite a friend.
LUNCHEON DETAILS
RSVP REQUIRED
UNIVERSITY CLUB
1225 SW 6th Ave. Portland, OR 97204
WEDNESDAY APRIL 26TH
11:45 AM- 1:15 P

 

Did I get a THUMPS UP??

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We just held the event Monday.  I will call this week and let you know how it went and if I got a thumps up. BUT, the feedback I got so far has been positive!

I felt really POSITIVE about the event.  We had some problems in the set up, but fortunately my contact there gave us plenty of time to work things out.  I ended up working for almost an hour to get the program to work properly.   Again, God bless my contact for taking the time to make sure that everything work out.  He was amazing!

And what did the people leaving say?

You will have to wait to here!  I know; how mean is that.

Jill had her books on the table, all signed, ready to give to the people attending.  I took the photo below.  I don’t want to brag, but isn’t she just wonderful!!!

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Jill’s remarkable story is featured in this book!

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Everyone has a story to tell.  Gordon and I are included in this book of stories by seven local area people, all facing challenges, all looking for hope, and all learning to rise from their circumstances to find meaning.  It is an honor to be included with these people and humbling to read their stories.

Would you like to read it?  Our story is #5: Letting Go.  We have 5 copies to give away.  Simply click here and fill in your address.  Upon receipt, we send out the first 5 books.  Better hurry!

Wait…ANOTHER email?

PainfulBlessingCvr-Front-for-webI know what you are going to say: not another email?  But this one is different.  He had a similar stroke that I had:

Hi Jill,

Thank you so much for the response. Yes, speech is continually a struggle for Tim as well. Probably his least favorite therapy. I agree any little gain is huge for us too because as time goes on the larger gains don’t come as frequently so celebrating the little things is the way to go. Some days however it seems like 2 steps forward 5 steps back depending on how he feels or just “if it there” that day. Some days he just can’t get his thought process of motor movement working especially with speech and the other day when he was trying to take a step. He just could not figure out how to step up a step. Something he does lots of times a day everyday and for whatever reason it just did not work that day.

I am very lucky that Tim’s attitude has always been positive. It is almost a blessing and a curse because yes he was positive and not angry or depressed but a negative because I think it took him longer to realize the importance of practice, practice, practice. I think it took him getting  tired of me not knowing what he was trying to communicate to realize that it just was not going to come without working on it.

Interesting tidbit, Tim also suffered a dissection of his carotid artery. His was the interior and it just broke off. No clot, it was just empty. The Neurologist said it looked like he suffered a trauma with stress that might have gone along with being a body builder. Tim is nowhere near the body builder type.  I follow a lot of support group feeds and I don’t see dissection too often as a cause so it thought that was interesting when I read that Gordon had a dissection as well.

In the beginning I kept trying to figure out why this happened was there something I missed, etc. But over time I have realized that I cannot focus on that because there is no answer and by constantly focusing on those things was not good for me. What kinds of things have you found to be helpful to keep your own sanity so to speak? (You know when those days creep in that put you in the mindset of can I do this, am I doing everything that I am supposed to be doing, am I making the best decisions both financially and medically for everyone, etc).

Tim…you are not alone!

Jill is helping out; OHSU takes a different approach to designing new South Waterfront building…

A warehouse along Macadam Avenue in Portland houses a maze of cardboard, almost like an adult version of children’s forts.

The cardboard has aided Oregon Health & Science University in designing the rooms inside its planned $340 million patient building, parking structure and guest house that will break ground early next year.

In an unusual move, OHSU and ZGF Architects are engaging all the various groups who will use the building in the planning process. Doctors, nurses, patients, engineers and housekeepers all have given input over the past five months.

“It’s given everyone a new perspective on how we can craft everything,” said Dr. Reid Mueller, associate professor in the Division of Facial Plastic and Reconstructive Surgery. “Everything from the way the hallway flows to the positioning of the chair when you’re sitting with your family member and the importance of privacy in the recovery area.”

One patient who has participated is Jill Viggiano, whose husband had a stroke seven years ago.

“I have no medical background at all, it’s like stepping into Oz,” Viggiano said. She suggested the waiting room in the new building contain more distractions for family members, including kids — “something to play with and look at and be a kid and not feel like they’re annoying everyone else.”

The Center for Health and Healing South, as the new building will be called, will sit just south of the existing Center for Health and Healing, which contains doctors’ offices and outpatient space. It will also be a little shorter, at 15 as opposed to 16 floors.

The entire project will encompass 750,000 square feet. It will include 48 “extended stay” rooms and 76 guest rooms above the adjacent five-story garage. A small park will remain next to the patient building.

CHH-South will also contain space for surgery, interventional procedures, outpatient clinics for cancer, cardiovascular disease and gastroenterology, a pharmacy and imaging and lab space, conference center, parking garage and space for Knight Cancer Institute clinical trials.

An oval-shaped “mission control design” will allow gastroenterology, cardiology and pulmonary procedures to share a central core and some nursing staff.

“One of the great things about the space is that we’re integrating with other specialties,” said Dr. Gene Bakis, assistant professor of medicine, Division of Gastroenterology and Hepatology. “Patients are best served by multiple specialties. Here we’re going to be feet away from each other to promote cooperation and collaborative thinking.”